In-Home Respite Service Usage Rates by Diagnosis

Fiscal Year	Service Option	Number of Consumers	Median Usage (Percent)	Diagnosis
2016-17	Agency/EOR*	38,097	73	Autism
2016-17	FMS	1,754	92	Autism
2017-18	Agency/EOR*	42,792	73	Autism
2017-18	FMS	2,083	94	Autism
2018-19	Agency/EOR*	48,471	74	Autism
2018-19	FMS	2,408	94	Autism
2019-20	Agency/EOR*	54,430	63	Autism
2019-20	FMS	2,677	88	Autism
2020-21	Agency/EOR*	59,468	56	Autism
2020-21	FMS	2,820	86	Autism
2016-17	Agency/EOR*	10,066	90	Cerebral Palsy
2016-17	FMS	867	95	Cerebral Palsy
2017-18	Agency/EOR*	10,263	90	Cerebral Palsy
2017-18	FMS	918	96	Cerebral Palsy
2018-19	Agency/EOR*	10,738	89	Cerebral Palsy
2018-19	FMS	984	96	Cerebral Palsy
2019-20	Agency/EOR*	11,067	81	Cerebral Palsy
2019-20	FMS	1,005	91	Cerebral Palsy
2020-21	Agency/EOR*	11,162	78	Cerebral Palsy
2020-21	FMS	1,003	87	Cerebral Palsy
2016-17	Agency/EOR*	9,349	91	Epilepsy
2016-17	FMS	914	96	Epilepsy
2017-18	Agency/EOR*	9,552	90	Epilepsy
2017-18	FMS	992	97	Epilepsy
2018-19	Agency/EOR*	9,913	89	Epilepsy
2018-19	FMS	1,063	98	Epilepsy
2019-20	Agency/EOR*	10,170	81	Epilepsy
2019-20	FMS	1,103	92	Epilepsy
2020-21	Agency/EOR*	10,286	79	Epilepsy
2020-21	FMS	1,115	89	Epilepsy
2016-17	Agency/EOR*	41,992	87	Intellectual Disability
2016-17	FMS	2,955	96	Intellectual Disability
2017-18	Agency/EOR*	43,889	87	Intellectual Disability
2017-18	FMS	3,261	97	Intellectual Disability
2018-19	Agency/EOR*	46,363	86	Intellectual Disability
2018-19	FMS	3,509	97	Intellectual Disability
2019-20	Agency/EOR*	48,523	77	Intellectual Disability
2019-20	FMS	3,654	91	Intellectual Disability
2020-21	Agency/EOR*	50,002	73	Intellectual Disability
2020-21	FMS	3,665	88	Intellectual Disability
2016-17	Agency/EOR*	6,444	82	Other Diagnosis
2016-17	FMS	480	92	Other Diagnosis
2017-18	Agency/EOR*	6,943	82	Other Diagnosis
2017-18	FMS	521	92	Other Diagnosis
2018-19	Agency/EOR*	7,748	81	Other Diagnosis
2018-19	FMS	578	94	Other Diagnosis
2019-20	Agency/EOR*	8,494	71	Other Diagnosis
2019-20	FMS	619	88	Other Diagnosis
2020-21	Agency/EOR*	9,246	67	Other Diagnosis
2020-21	FMS	656	81	Other Diagnosis

Source: Analysis of DDS' consumer demographic, diagnosis, authorization, and claims data as of December 6, 2021.

Notes: We classified a regional center as not offering FMS if less than 1 percent of its consumers had an authorization for FMS in fiscal year 2020-21. To maintain confidentiality of those minimal numbers, we redacted details of FMS use at these regional centers. For this same reason, we also redacted details of respite usage of 10 or fewer consumers.

We used the median value when comparing respite care usage, which represents the middle value of a category�s respite care usage. This measure indicates that half of the consumers in the category use less than the median amount of respite and half of the consumers use more than the median amount.

*DDS tracks the number of families that use the Agency option and the EOR option in aggregate, but does not identify totals for each option.